So, the day after I wrote my last post I ended up getting c-diff again. I contacted my care team right away and they got me on another antibiotic that day. I was fortunate enough that within two days the antibiotic was already working.
My oncology care team decided to go ahead with my fifth infusion that Thursday October 10th with the exception of withholding Avastin. I still received my other two chemotherapy's and my immunotherapy. The infusion went well but left me exhausted for about a week and a half. I slept a lot.
On Thursday I had routine bloodwork drawn for my rheumatologist appointment the next week. The next day I woke up to 3 phone calls and 5 text messages from her nurse that my white blood cell count was dangerously low and that I needed to go to the ER immediately. I contacted my oncology care team to have them look at it. I received a call back and they said, "you are nine days out from your treatment and that is when the white blood cells are at their lowest. We will recheck them next week before your infusion." I was super thankful I didn't need to go to the hospital.
On Tuesday October 22nd I dropped my computer on my left foot/ big toe. I still have lots of swelling and really dark bruising. It has made walking very difficult.
Yesterday, I had my 6th infusion. All blood work looked really good, even my white blood cell count was back up. We. did all three chemotherapies and immunotherapy.
So far I am doing good. Keeping on top of my anti nausea meds has helped.
Prayers:
- For healing of my foot
- For no side effects from my current infusion
Pic:One of my infusion bags from yesterday
So, my last infusion was on September 4th and went really well. I had enough energy that I was able to help with some yard work that weekend. However, I woke up on Tuesday morning feeling so tired. I slept off and on that whole day. In the middle of the night I woke up with diarrhea. This continued for the next three days, with trips to the bathroom and then to bed to sleep.
On Friday Devin had an RN come to the house to give me an IV with vitamins. On Saturday afternoon I finally had some energy and was awake for a few hours.
Sunday Devin decided that we needed to find out what was going on with me as I was still having diarrhea. So off to the hospital we went. My blood work was all good and they gave my an IV because I was dehydrated. They also sent out a stool sample and sent me home. I was so glad they didn't admit me.
On Monday morning I got a call from the lab that I had C-Diff. So they ordered me 10 days of antibiotics. Finally on day nine I started to feel better. Devin did have the RN come back on Friday to give me another IV with vitamins. For three weeks all I did was sleep, watch a little tv and then sleep some more.
I am grateful that I was well enough to go with Kylie and Devin to UNC Charlotte for their open house on September 28th. It is one of five schools Kylie is looking into for college. I can't believe we are already thinking about college!!!
I am scheduled for my next infusion on Thursday this week. My last one was canceled because of the C-Diff.
Praise:
- That I was able to get over C-Diff with only 1 round of antibiotics
Prayers:
- That my infusion will go well with minimum side effects
- That I can start to regain the strength that I lost while being in bed for 3 weeks
Pic: Devin, Kylie & I at UNC Charlotte
Short and sweet update. As always, thank you for the well wishes and prayers! They are greatly appreciated!!!
Yesterday was a long eleven hour day. I had blood drawn at the lab, saw my oncologist (Dr. Brown), and had all three of my chemotherapies and my immunotherapy during my infusion. I am happy to report that all went very well.
My abdominal infection is almost healed completely.
I have felt pretty good today. Good energy and so far only one side effect. I am starting to get some stomach queasiness even with my nausea medications. I will be starting to double up on those to see if it helps along with eating smaller potions of food more often.
Prayers:
- For the queasiness to go away completely
- To have good energy levels
Pic: My new favorite quote and it happens to be from OOLA!!!
